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What is the National Study of Caregiving?

The National Study of Caregiving (NSOC) is a national study of people who help or have helped their older family members and friends with their daily activities.

NSOC looks at the important role of family members and friends in providing help and care for our growing aging population.

Telephone interviews are conducted with individuals who have a family member or friend who is participating or participated in the National Health and Aging Trends Study (NHATS). NHATS is a study of how daily life changes as people age.

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Why is this study being conducted?

The study information will be used to understand the many important ways that people help their older relatives and friends with their daily activities and how this experience affects those who help.

After the information is collected and compiled, the NSOC data will be available to researchers.

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Why should I participate?

Being part of this very important study will help us to better understand the experiences of people like you who have provided necessary help with daily activities to older family members and friends.

You will be mailed a check for $20 for completing the interview. If you are eligible and complete a follow-up interview, you will receive another $30.

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How was I selected?

You were selected because you have helped with household activities such as meals, shopping, or transportation, or personal care activities such as helping with medications, bathing, or dressing to a family member or friend who has participated in NHATS.

You are one of about 2,500 individuals selected for the National Study of Caregiving.

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How do I know this is a legitimate study?

The National Study of Caregiving is funded by the National Institute on Aging (NIA) at the National Institutes of Health, which sponsors the National Health and Aging Trends Study. The Johns Hopkins Bloomberg School of Public Health is working with Westat to conduct the study.

Participation in the study is voluntary. Those who agree to be part of the study can still refuse to answer any question asked during the study.

You can call the study's toll-free telephone number at 1-855-421-1182 to get more information.

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Is information about me kept confidential?

We will follow strict procedures and guidelines to keep he information you give private and safe. No answers that you provide will be given or told to the relative or friend that you have helped who is an NHATS participant.

Your answers will be used for research purposes only. Names and addresses will be kept separate from your information so that no one will know who gave what answers.

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Who will be collecting this information and how long will it take?

NSOC is being conducted by the Johns Hopkins Bloomberg School of Public Health, with data collection by Westat, and support from the National Institute on Aging.

Trained telephone interviewers from Westat, a national research company based in Rockville, Maryland, will conduct the 30-minute telephone interview. You can visit the Westat website at (link is external).

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What kind of information is collected?

The telephone interview will include questions about you, your health, the ways you have helped your relative or friend with everyday activities, and about your family. For individuals whose relative or friend is deceased, the interview will focus on the help provided in the last month of his or her life.

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Whom can I contact if I have additional questions?

If you have additional questions about this study, please call this toll free number:


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